Bronchiectasis Registries

In the first 3-5 years, the Child-BEAR-Net Registry aims to:

1. Evaluate the underlying aetiology, treatments and outcomes

2. Assess long-term outcomes that are important to patients, providers, and other decision-makers

3. Facilitate recruitment of patients for clinical studies 

 

Our subsequent longer-term aims are to:

1. Provide real-world evidence on the effectiveness of interventions

2. Time trends of aetiology, treatments and outcomes

3. Identify areas of sub-standard clinical management

4. Improve awareness of diagnosis so as to prevent the delay of diagnosis

5. Link children’s data with future adult-based registries

6. Link with registries of other diseases where bronchiectasis is common

 

Each country will have governance of their own registry.