Bronchiectasis Registries
The Children's BEAR Network is developing a collaborative bronchiectasis registry to document the incidence and prevalence of bronchiectasis, and to map the natural history of the disease. High quality data will help to answer key questions that will ultimately lead to better treatment and quality of life for those with bronchiectasis.
In the first 3-5 years, the Child-BEAR-Net Registry aims to:
Evaluate the underlying aetiology, treatments and outcomes
Assess long-term outcomes that are important to patients, providers, and other decision-makers
Facilitate recruitment of patients for clinical studies
Our subsequent longer-term aims are to:
Provide real-world evidence on the effectiveness of interventions
Time trends of aetiology, treatments and outcomes
Identify areas of sub-standard clinical management
Improve awareness of diagnosis so as to prevent the delay of diagnosis
Link children’s data with future adult-based registries
Link with registries of other diseases where bronchiectasis is common
Each country will have governance of their own registry. Country Leads are listed below.

Australia
Prof Stephanie Yerkovich
Queensland University of Technology, Menzies School of Health Research

Austria
Prof Angela Zacharasiewicz
Wilhelminen Hospital, University of Vienna

Belgium
Prof Marijke Proesmans
Respiratory Paediatrics, UZ Leuven

Brazil
Prof Gilberto Fischer
University of Health Science, Hospital da Criança Santo Antonio

France
Prof Jean-Christophe Dubus
Pneumo-Allergology & Ventilation Unit, CHU Timone-Enfants and Aix-Marseille University

Germany
Prof Matthias Griese
Pediatrics Hauner
Children´s Hospital, University of Munich

Greece
Prof Konstantinos Douros
“Attikon” University Hospital, National and Kapodistrian University of Athens

Guatemala
Dr. Edgar L. Beltetón
Centro Pediátrico de Guatemala
Centro Aero Digestivo

Israel
Dr Dario Prais
Pediatric Pulmonology Institute,
Schneider Children’s Medical Center of Israel

Italy
Prof Fabio Midulla
Maternal Science, Sapienza University of Rome

Italy
Dr Laura Petrarca
Deputy Registry Lead
Sapienza University of Rome

Malaysia
Prof Anna Nathan
University of Malaya Medical Centre

Malaysia
Dr Asiah Kassim
Hospital Tunku Azizah
Kuala Lumpur

Norway
Dr Christine Sachs-Olsen
Department of Paediatrics
Oslo University Hospital

Philippines
Dr Marion Sanchez
St Luke's Medical Centre
Philippine Academy of Pediatric Pulmonologists Inc.

Portugal
Dr Carolina Constant
Department of Pediatrics, Hospital de Santa Maria and Faculty of Medicine, University of Lisbon

Scotland
Dr Stefan Unger
Royal Hospital for Children and Young People

South Africa
Dr Charl Verwey
Chris Hani Baragwanath Academic Hospital, University of the Witwatersrand

Spain
Prof Antonio Moreno Galdó
Hospital Universitari Vall d’Hebron, Universitat Autònoma de Barcelona

Spain
Dr Laura Garriga Grimau
Deputy Registry Lead
Hospital Vall d'Hebron

Switzerland
Prof Alexander Moeller
University of Zurich,
University Children’s Hospital Zurich

Thailand
Dr Wicharn (Elm) Boonjindasup
Faculty of Medicine, Chulalongkorn University

Turkey
Prof Bulent Karadag
Pediatric Pulmonology, Marmara University Faculty of Medicine

Ukraine
Prof Oleksandr Mazulov
National Pirogov Memorial Medical University, Vinnytsia Children's Regional Hospital

United Kingdom
Prof Siobhán Carr
Royal Brompton and Harefield NHS Foundation Trust

USA
Prof Greg Redding
University of Washington,
Seattle Children’s Hospital